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  • interoperability
Ethical sharing of health data in online platforms – which values should be considered?
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Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology (ICT) platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes.

With this in mind, the Science and Values Working Group of the COST Action CHIP ME ‘Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives’ (IS 1303) identified six core values they considered to be essential for the ethical sharing of health data using ICT platforms. We believe that using this ethical framework will promote respectful scientific practices in order to maintain individuals’ trust in research.

We use these values to analyse five ICT platforms and explore how emerging data sharing platforms are reconfiguring the data sharing experience from a range of perspectives. We discuss which types of values, rights and responsibilities they entail and enshrine within their philosophy or outlook on what it means to share personal health information. Through this discussion we address issues of the design and the development process of personal health data and patient-oriented infrastructures, as well as new forms of technologically-mediated empowerment.

Subject:
Applied Science
Health, Medicine and Nursing
Material Type:
Reading
Author:
Aaro Tupasela
Danya F. Vears
Heike Felzmann
Julian Cockbain
Michele Loi
Nana C. H. Kongsholm
Silvia Sullo
Vojin Rakic
Brigida Riso
Date Added:
06/23/2020
FHIR Fundamentals
Only Sharing Permitted
CC BY-NC-ND
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This course provides a comprehensive review of interoperability, health data standards, and other advanced topics including Substitutable Medical Applications, Reusable Technologies (SMART) and Fast Healthcare Interoperability Resources® (FHIR), also known as SMART-on-FHIR applications and Accelerator projects. This course will use Interoperability Land™ to provide learners with a hands-on experience using FHIR resources. Upon successful completion of this course, learners will be able to: explain interoperability and use cases; locate information within JSON and XML files; Create queries in IOL; understand SMART application authorization. Interoperability Land can be purchased on AWS Marketplace at the followinglink: https://aws.amazon.com/marketplace/pp/prodview-f34r2uj3naohe For information regarding education pricing please email contactus@interoperabilityinstitute.org.

Subject:
Health, Medicine and Nursing
Information Science
Material Type:
Activity/Lab
Diagram/Illustration
Full Course
Lesson Plan
Reading
Student Guide
Author:
Interoperability Institute
Date Added:
08/24/2021
The Great Data States: North Dakota
Unrestricted Use
CC BY
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SETDA and Project Unicorn host a conversation with North Dakota state educational technology leaders on some of their work to promote interoperability in educational data systems.

Subject:
Education
Educational Technology
Material Type:
Case Study
Author:
Project Unicorn
SETDA
Date Added:
07/17/2022
The Great Data States Series: Nebraska
Unrestricted Use
CC BY
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SETDA and Project Unicorn host a conversation with Nebraska state educational technology leaders on some of their work to promote interoperability in educational data systems.

Subject:
Education
Educational Technology
Material Type:
Case Study
Author:
Project Unicorn
SETDA
Date Added:
07/17/2022
Mini Car Design Challenge
Conditional Remix & Share Permitted
CC BY-NC
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This engineering design challenge is a great hands-on activity that utilizes the engineering design process, 3D modeling, and 3D printing technology. The challenge can be completed individually or in groups of 2 to 3. Students will work to complete the following challenge: Using the design process, design, document, model, and produce a toy car with interchangeable parts.

Subject:
Applied Science
Engineering
Material Type:
Activity/Lab
Lesson Plan
Date Added:
05/07/2021
Mini Car Design Challenge
Conditional Remix & Share Permitted
CC BY-NC
Rating
0.0 stars

This engineering design challenge is a great hands-on activity that utilizes the engineering design process, 3D modeling, and 3D printing technology. The challenge can be completed individually or in groups of 2 to 3. Students will work to complete the following challenge: Using the design process, design, document, model, and produce a toy car with interchangeable parts.

Subject:
Applied Science
Engineering
Material Type:
Activity/Lab
Lesson Plan
Date Added:
12/05/2018
Mini Car Design Challenge
Conditional Remix & Share Permitted
CC BY-NC
Rating
0.0 stars

This engineering design challenge is a great hands-on activity that utilizes the engineering design process, 3D modeling, and 3D printing technology. The challenge can be completed individually or in groups of 2 to 3. Students will work to complete the following challenge: Using the design process, design, document, model, and produce a toy car with interchangeable parts.

Subject:
Applied Science
Engineering
Material Type:
Activity/Lab
Lesson Plan
Date Added:
05/09/2021
Mini Car Design Challenge
Conditional Remix & Share Permitted
CC BY-NC
Rating
0.0 stars

This engineering design challenge is a great hands-on activity that utilizes the engineering design process, 3D modeling, and 3D printing technology. The challenge can be completed individually or in groups of 2 to 3. Students will work to complete the following challenge: Using the design process, design, document, model, and produce a toy car with interchangeable parts.

Subject:
Applied Science
Engineering
Material Type:
Activity/Lab
Lesson Plan
Date Added:
06/16/2021
Mini Car Design Challenge
Conditional Remix & Share Permitted
CC BY-NC
Rating
0.0 stars

This engineering design challenge is a great hands-on activity that utilizes the engineering design process, 3D modeling, and 3D printing technology. The challenge can be completed individually or in groups of 2 to 3. Students will work to complete the following challenge: Using the design process, design, document, model, and produce a toy car with interchangeable parts.

Subject:
Applied Science
Engineering
Material Type:
Activity/Lab
Lesson Plan
Date Added:
05/12/2021
SETDA Interoperability Brief (April 2022)
Unrestricted Use
CC BY
Rating
0.0 stars

SETDA, CCSSO and Project Unicorn collaborate to improve data interoperability in schools. This second brief from their work together outlines considerations for working with vendors, identifies data standards, and shares promising practices.

Subject:
Education
Educational Technology
Material Type:
Case Study
Author:
SETDA
Date Added:
07/29/2022
SETDA Interoperability Brief (July 2021)
Unrestricted Use
CC BY
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SETDA, CCSSO and Project Unicorn collaborate to improve data interoperability in schools. This first brief from their work together establishes an overview of interoperability, shares promising practices from states, and gives a call to action for state education agencies.

Subject:
Education
Educational Technology
Material Type:
Case Study
Author:
SETDA
Date Added:
07/29/2022
SETDA Interoperability and Data Modernization Brief (Summer 2023)
Unrestricted Use
CC BY
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Developed through SETDA's Data Modernization Working Group, this brief provides the key points for interoperability and data modernization. Data modernization allows state education agencies to leverage data as a strategic asset and drive insights, decision-making, and innovation.

Subject:
Education
Educational Technology
Material Type:
Case Study
Author:
SETDA
Date Added:
06/14/2023